Post 55 - You Want Me To Put That Where?
The following is a conversation that took place in my urologist’s office during my last visit a few weeks ago. This is the same specialist who has seen me for at least five years and has treated my...
View ArticlePost 56 - Just How Fat Is This Guy Gonna Get?
When I started this humble blog in August of 2009, I weighed somewhere around 150 pounds, the same weight I carried for many years, especially since replacing my highly caloric lunches with a cup of...
View ArticlePost 57- Another Post, in Less Than A Week - How Come?
I usually try to spread out these posts to once a month; and honestly, there are months when I really have to work at coming up with a topic of interest. Occasionally the opposite is true; once in a...
View ArticlePost 58 - Another Concession
If you have spent your valuable time actually reading some of the many entries that make up this blog, you’ve noted a theme that pops up every now and then. You may recall that I complain that I’ve...
View ArticlePost 59 - Help for the Handicapped
Every other year, a quiet and subdued Christmas celebration takes place at our house – just a few close friends or relatives who aren’t heading north or who live here year-round. Next Christmas,...
View ArticlePost 60 - Who Moved That Wall
Those of you who read Post 58 or, “Another Concession,” learned of my purchase of a Jazzy ”Ultra” motorized wheelchair to take the place of my regular chair. This power chair was intended to make it...
View ArticlePost 61 - Where do the Months Go?
I must apologize to readers of this blog for the delay between postings. I try to post at least every thirty days but I realized today that I haven't posted since January19th. In my defense, my mind...
View ArticlePost 62 - Just Another Accomodation
I‘ve mentioned several times before how MSA involves adapting to a series of physical conditions such as conditions affecting balance which require first a cane or walker, later a wheelchair, so...
View ArticlePost 63 - That's All Folks (sort of)
This blog, which began in August of 2009 when I decided to chronicle my trip to Germany for what turned out to be unsuccessful stem cell treatment, will semi-conclude with this post, #63....
View ArticlePost 64 - Part One and Part Two
This is Part One of what is intended to be a two-part post describing the lead-up (part one) and part two – the actual procedure , which will result in the placement of a supra pubic catheter in the...
View ArticlePost 65 - A Message From Fran
For those who don't know me, I'm Fran, Steve's wife.. I told Steve I would help him type his messages if he dictated. I didn't think I would be writing my own message for his blog.A lot has happened...
View ArticlePost 66 - Boy, Is My Face Red!
In a prior post on this blog, Fran explained some of my urinary problems and mentioned how I had decided to have a supra pubic catheter installed. For the benefit of those people who may not know, a...
View ArticlePost 67 – What Next?
By now you’re probably sick of hearing about the trials and tribulations I’ve experienced while adjusting to my supra-pubic catheter which was surgically implanted on May 10th Just one more cautionary...
View ArticlePost 68 - My Turn
I guess it's my turn to write. Steve is ok. It's just that it takes him so long to type that he gives up. He has emailed several friends this past week. Short notes that took him the better part of...
View ArticlePost 69 – It’s Gonna Be a Busy Couple of Weeks
Most weeks go by with nothing going on. Time to sit around and read or to catch up on messages from good friends who genuinely care about my condition. These coming weeks, however, promise to be...
View ArticlePost 70 - Isn't This A Pain In The #%&*
First, let me apologize to the many nice people who have left messages or comments in the past few weeks. Please do not think I have ignored you. Very much to the contrary, I open and read all...
View ArticlePost 71 - The End Of A Busy Week
As mentioned in Blog entry #68, this week was chock-full of doctor visits, catheter changes, and assorted tests. Everything was going along predictably until Wednesday night when the Sleep Study was...
View ArticlePost 72 - The Results Are In.
My sleep study follow-up was yesterday and even though I have been told by my sleep partner that I probably have sleep apnea, I didn't expect the doctor to say "severe OSA" which stands for Obstructive...
View ArticlePost 73 - Finally!
After weeks of waiting, I finally have taken possession of a sleep machine; specifically called a BiPA autoSV Advanced System One by Philips or, as it’s more commonly known, a new version of a BiPAP...
View ArticlePost 74 - A Note from Fran
Several of our friends have been inquiring as to how Steve is doing with his new Bi-Pap machine. I've decided to post an entry to let you know about our trials and tribulations with this BOX.Eventually...
View ArticlePost 75 - Odds and Ends (no pun intended)
It has been a while, so I (Fran) thought I would let everyone know that the Bi-Pap machine is doing it's job. The technician decided we needed a new machine. It took a while for the supply company,...
View ArticlePost 76 - Ouch! Ouch! Ouch!
Ouch! Ouch! Ouch!When things get ironed out on one end something else gets wrinkled on the other.Several new happenings this month.First the bi-pap machine. It was back to it's old self with dozens of...
View ArticlePost 77 - New Month, New Message
I'm glad to say that things are going along pretty well. I am irrigating Steve's catheter every morning and that seems to be keeping the sediment buildup in check.Steve has finally acclimated to the...
View ArticlePost 78 - STEVE STEIDEL 1944-2014
I'm so sad. We lost Steve on June 28. He was doing ok. We were managing all his symptoms and problems. We quietly celebrated our 49th anniversary on June 12. Then, the following week he started...
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The Diagnosis
Hi, this is Steve’s daughter Deb writing. It was very important to my dad to donate his brain for research. He also wanted us to have a definitive diagnosis – MSA is not typically hereditary, unlike...
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